Our time to rise above. Our time to renew, remake and reenergize. So let's take a moment to remind ourselves that we bring the most needed support at the most heightened moment to those affected by cancer—from day one. Above all else, they are our priority. We fight with them to rise above the odds, the expectations and the disease. We all rise above. Together.
As one of our supporters stated, “I feel like I’m the number one priority for the Foundation. I’m above all other things to them. There are so many layers to this journey, and they help me rise to the top ... where I can breathe.”
Community. It’s the first word that comes to mind when I think about the LIVESTRONG Foundation. In 2012, I never felt more strongly about the power of community as we—together with you by our side—faced difficult headwinds and uncharted territory.
Through that and beyond, as we move with excitement into a new, promising and singularly focused era for our Foundation, we have remained intently focused on what matters: people affected by cancer today and our mission to improve their lives. Last year, our 15th anniversary, we achieved several significant successes that helped us perform at the highest level and positioned us to move forward with even greater success.
First, thanks to your hard work and support, we surpassed the 2.5-million-people-served milestone by helping a record number of people in 2012 through our free, one-on-one cancer support services. Offered in person, by phone and online, these highly personalized, deeply engaged services connect people to treatment options, financial counseling, clinical trial access, fertility preservation, insurance and transportation assistance, emotional support and much more. With 14 million Americans living with cancer now and 4,500 Americans receiving new diagnoses each day, we know the need is great. Most important, we know it works. Research shows that addressing the concerns of the whole patient, alongside their medical treatment, produces measurably better outcomes in improved quality of life and prolonged survival.
Second, we worked on the front lines and across the globe to advance cancer care. We engaged in public policy matters that affect people with cancer and fought against the cancer stigmas that still exist, hampering life-saving diagnoses and treatment, in many parts of the world. Third, we continued our groundbreaking work to foster ongoing dialogue with cancer patients and survivors through Foundation research and surveys, and we gained deeper insights that inform both our programs and the wider cancer community’s treatment protocols. Fourth, we worked closely with our many programmatic and cause marketing partners to strengthen our financial future, expand our efforts and deliver first-rate services for those in need.
Our accomplishments would not be possible without the steadfast commitment of our Chairman Jeff Garvey, our Board of Directors and our millions of dedicated supporters. Our success has always been derived from people from all walks of life who meet a cancer diagnosis with hope and more than a little grit. We are inspired by you to dream bigger and reach further.
Although some things have changed, one thing remains absolutely true: This Foundation doesn’t back down from a challenge. Make no mistake that we will forge ahead boldly in 2013 and beyond to continue making a difference in the lives of people affected by cancer.
Sarah and her husband were ready. Ready to start a family, ready to get back to normal life beyond cancer. Then, the second diagnosis came. Breast cancer. Again. The news was devastating, and the options were few.
At 31, Sarah chose to have her ovaries removed, her best chance to survive. She thought it meant her dream of being a parent was over. She was fighting for her own life now. But when her oncologist mentioned the possibility of in vitro fertilization and connected Sarah to the LIVESTRONG Foundation, everything changed.
Sarah and her husband worked with one of our navigators to help pay for the medications and services for freezing embryos. And when her sister-in-law stepped forward to be a surrogate, their dreams came true. Lily D. was born nine months later.
Sarah sums it up,“The LIVESTRONG Foundation made what we thought was impossible ... possible.” Continue Reading
Cancer happens to a person, not a number. Each person has her journey, his experience, her feelings, his attitude. Facing that journey is precisely the reason we provide free cancer navigation services to help those affected by cancer. We help survivors understand that they can take control of their experience. From the physical to the emotional to the practical, we provide a wide range of support services.
"At the time of my diagnosis, I'd been married to my high school sweetheart for nine years. We had a daughter who was about to turn four. In my head I thought by not talking to my wife about cancer, I was protecting her. My wife filed for divorce shortly after my brain surgery. Sometimes I worry that the way I handled my emotions and ideas about dying, cancer and finances pushed someone I loved away.
The LIVESTRONG Cancer and Relationships class gave me some perspective. The Foundation connected me with other people who understand what I'm going through."
Brian Rose didn’t mince words, and neither will we. He was an inspiration.
Brian was a baseball coach, a husband, a friend, but more than anything, he was a man on a mission to spread the word about cancer education and awareness. When Brian was diagnosed with Stage 4 melanoma, he found help through the LIVESTRONG Foundation, and we found a hero. Working with our navigation services, Brian received support with insurance, fertility and especially clinical trials. In turn, Brian became an outspoken advocate for not only the Foundation’s work, but for all those affected by cancer, championing his “Fight Like Hell” mantra.
In January of 2013, the world lost Brian Rose, but it did not lose his unforgettable spirit and inspiration. Thank you, Brian. We miss you.
Barbara Simmons took on one of the biggest challenges of her life in 2012—a LIVESTRONG Foundation challenge known as RAGBRAI. Seven consecutive days of cycling, each day longer than the next, in 100-plus degree heat across Iowa. And, in her opinion, she's not even a cyclist. Pretty incredible, to say the least, but it's not the biggest challenge she's ever faced.
The power of a grassroots movement that truly harnesses the passion of its advocates is an inspiring thing. As the number of grassroots supporters increased in 2012, the LIVESTRONG Leader program also expanded.
The Leader program engages volunteers around the world to serve and inspire cancer survivors. Within their local communities, Leaders promote the Foundation’s navigation services, resources and other key programs; support our advocacy work with important policy and legislation; and fundraise. By supporting our priorities, developing relationships with community leaders and initiating their own activities, more communities and individuals are impacted by our mission and services.
|Cause Marketing And Licensing||$||10,311,941||21.5%|
|Dividends and Interest||5,606,874||11.7%|
|Management and General||1,749,174||3.9%|
|Education Programs and Policy||$||19,251,695||51.1%|
The most impressive number from 2012 might have come in the form of miles. Steve Cannon loves to run like nobody else you know. So much so that he decided to take on 40 marathons in 40 days, but not just for any reason. For those battling cancer today.
When Steve began his 1,000-plus-mile journey around Lake Michigan, he had no idea just how personally he would be affected during the process. On day 20, his mother called him to deliver the news that Steve’s Uncle Mike had stomach cancer. She passed along Uncle Mike’s words of encouragement and Steve continued. But only seven days later, Steve’s uncle passed away. His instinct was to stop and go home to be with his family, but his mother said, "Absolutely not! Uncle Mike runs with you now. You finish this."
Steve describes the rest of the 40-day event as a "journey within a journey."
"Uncle Mike ran the rest of that day and many others with me. I ran much of the day on his legs, knowing he was free from pain and with me, smiling every step."
On July 5, 2012, after becoming the first person to run around Lake Michigan, Steve returned to family and friends having raised $33,000 to help people affected by cancer. He also returned with even more passion and drive to continue the fight. In 2013, he has organized the Million Dollar Marathon. His team of more than 100 runners will run across the country, coast to coast, to raise awareness about cancer. Continue Reading
Sam and his wife, Sandy, love playing golf together. The fresh air, the exercise, the views. Sam is especially good at chipping from just off the green. But when Sam found out that a swollen lymph gland was cancerous, he didn’t realize just how quickly the treatment would bring his life, and Sandy’s, to a halt.
After the radiation, Sam found himself losing weight, coordination, balance and energy. Sandy knew he needed something to start him back on the road to recovery. When she saw a story in the local paper that the LIVESTRONG Foundation was working with cancer survivors at the YMCA, she knew the program could change their life.
Sam described the experience beautifully, “I could achieve things much more with a personal trainer who understands the effect of chemo and radiation than I was ever going to do on my own. You don’t have to tough it out on your own. There’s a program there to help you regain your confidence and zest for life and to help you know that there is quality life ahead of you.” And based on what Sam and Sandy have been up to, some quality rounds of golf, too.
Sam is just one of the many people we’ve helped through important programs in local communities. With our continually growing partnerships and the Community Impact Project (CIP), we have been able to expand our reach and help raise already successful programs to the next level. Continue Reading
Community Impact Project offers funding to organizations to recreate programs that have demonstrated success in supporting people affected by cancer within one city, state or region of the United States. Recreating programs that are proven to be effective has allowed us to eliminate the cost of developing new programs and allows for more immediate implementation to help cancer survivors and their families today—directly supporting our mission.
The 2012 Community Impact Project offered nearly $1.4 million in implementation awards to 90 selected applicants. This is the largest number of financial awards we have granted in a single year in the 15-year history of the Foundation. The four chosen community programs were:
Stephanie Myers found out she had cancer in the 8th grade. She felt isolated. She felt alone at school. And when she lost her hair from chemo, students laughed at her.
Andy Miller of the Foundation notes, "Cancer affects a large percentage of the American population. It affects their hopes, their dreams, their relationships. But no one ever teaches you about that."
Enter the LIVESTRONG at School program to help students cope with and learn about cancer and understand the impact it has on individuals like Stephanie. We touched more than 184,000 students and teachers in 2012. With one in three women and one in two men in the U.S. facing a cancer diagnosis in their lifetime, children in classrooms everywhere are likely to be dealing with cancer right now. The LIVESTRONG at School curriculum offers online lessons for grades K–12 to help students learn about cancer in a way that is age-appropriate, inspiring and empowering.
"IT’S PROBABLY THE BEST TWO DAYS OF CLASS INSTRUCTION THAT I’VE HAD IN A LONG TIME, BECAUSE MY KIDS WERE FOCUSED, THEY WERE INTERESTED, THEY SHARED OF THEMSELVES AND THEY BONDED. I COULDN’T ASK FOR A BETTER RESPONSE."
—BARBARA WOLANSKITEACHER Continue Reading
In addition to expanding our programs, our cause marketing partnerships grew in 2012 as well. One in particular made a big impact with just a tiny car.
car2Go is an international car-sharing program that sponsored the Team LIVESTRONG Challenge Austin. Because of sponsors like car2Go, 100% of the funds raised through our Challenge Series go directly to our programs and services. And if you’re in the Austin area, be sure to track down one of the car2Go Team LIVESTRONG Challenge-branded vehicles and take a ride in it to benefit the Foundation. Continue Reading
To this day, Clara Guzman still posts to her daughter’s Facebook page to share information about cancer. It’s part of a mission
that her daughter, Karen, started by being one of the bravest teenagers you’d ever meet. When Karen found out she had cancer,
she chose to fight. And share. And speak. And teach. And inspire. And she did it in Mexico, where the stigma of cancer causes
many people to do just the opposite.
Karen was one of the first public storytellers of Comparte tu Historia, a program launched by the LIVESTRONG Foundation in 2011. Though Karen lost her fight with cancer in 2012, she still battles the stigma of cancer in Mexico today. Her mother has started a foundation in Karen’s memory that educates teenagers against the stigma and misperceptions of cancer and encourages them to spread the word so the silence of cancer can be overcome.
This is why we do it. Not only in Mexico, but also in South Africa and now beyond. We continue to strive to create a better global understanding of the disease to help patients today. Continue Reading
With the success seen in South Africa and Mexico, the Foundation announced plans to expand its patient empowerment work to Japan.
Along with partner American Cancer Society (ACS) and lead agency Health and Global Policy Institute (HGPI), the Patient Empowerment
Project in Japan was born. The announcement was made at the World Cancer Congress during the session, “Innovative Strategies to
Empower Survivors in the Global Fight Against Cancer.”
The Patient Empowerment Project formally launched in November 2012 with a two-day roundtable in Tokyo that included survivors, health care providers and NGOs. It was designed to amplify the cancer patient’s voice by allowing people to share their stories through testimony in a forum in front of policy makers, media and the public. The goal is to build a grassroots movement that will bring visibility to gaps in cancer control and highlight the need for cancer to be a stronger priority on the country’s health agenda.
In December 2013 in Tokyo, the project will reach its pinnacle when a Patient Forum will bring together families, health care providers, government representatives, NGOs and media to listen to patient stories and engage in dialogue about key cancer issues facing patients in Japan. The Forum will be followed by a national call to action on cancer—informed by these patient voices and needs. Continue Reading
A special member of the Foundation’s family is our Director of Research, Ruth Rechis, a cancer survivor herself. She knows just how critical our mission is to help improve the lives of people affected by cancer. And she knows how to do something about it.
Ruth notes, “We do research to understand what people need, and then we create programs to help them. The work that we do is immediately translated into people's lives.”
Our flagship survey was conducted from June to December of 2012, results of which will help us to determine our plans moving forward.
This direct approach to research helped us lead the way in the cancer community’s conversation about survivorship care. There are approximately 14 million cancer survivors alive in the United States today, and that number is expected to grow to more than 18 million by 2020. As a result of innovative research, improved detection, access to care and treatment, and a focus on life after treatment ends, more people are surviving cancer than ever before. However, it has become clear that when primary treatment ends, the cancer journey does not. After treatment, many cancer survivors experience physical, emotional and practical concerns, but they don’t always receive the help they need.
That’s why throughout 2012, the LIVESTRONG Foundation continued advancing the Essential Elements of Survivorship Care initiative. After the Foundation worked to build consensus among key stakeholders on the essential elements of survivorship care in 2011, in 2012 the Foundation and the LIVESTRONG Survivorship Center of Excellence Network refined the definitions of the 20 Essential Elements. Included were specific recommendations and examples of basic and enriched levels of survivorship care. Additionally, the Foundation awarded Network Directors at the Fred Hutchinson Cancer Research Center to lead the Network in a collaborative research project to develop a cohort of young adult cancer survivors and test the impact of providing the essential elements of care to them. Continue Reading
Hand in hand with barriers like stigma come lack of access to quality medical care and pain relief for many of the 28 million people affected by cancer throughout the world. The Foundation has worked tirelessly at the national and global levels to help promote a shift in policy and funding—away from the traditional disease-centric approach and towards strengthening health systems that serve all the people.
In August 2012, the Foundation announced a $500,000 commitment and entered into a three-year joint initiative with the Union for International Cancer Control (UICC)—Expanding Global Access to Essential Medicines and Technologies. The Foundation and UICC set ambitious, but achievable, targets for essential medicines. We have developed a replicable, cost-effective model for improving access to pain relief in collaboration with Partners in Health (PIH) and the Global Access to Pain Relief Initiative (GAPRI), beginning with two hospitals in Haiti. Continue Reading
Haiti has experienced more than its fair share of tragedies over time, making it one of the least developed countries
in most need of community-based programs and services. Recent disasters have only compounded local health emergencies.
The partnership between the Foundation, PIH and GAPRI is expanding the ongoing cancer initiative to further address pain management and palliative care for underserved cancer patients in the country. The Pain-Free Hospital Initiative is providing education for patients and staff, raising motivation and awareness, documenting pain levels, improving access to essential pain medicines and communicating the impact of these efforts. The focus is on motivating clinicians to evaluate and treat pain by using campaign-style materials and routine pain assessments by staff nurses. Project staff offer continuing medical education programs for clinicians and nurses and distribute reference and training materials, including pain treatment guides and prescribing information, to equip each clinician with the tools to effectively apply standard treatment guidelines for pain treatment.
The staff of the first two hospitals involved, St. Marc’s and Cange, have already noted significant improvement in patient experiences, and the initiative is building a case for replicating the model across the country. Continue Reading
|Cash and Cash Equivalents||$||29,990,299|
|Endowment Funds and Investments||37,744,046|
|Deposits, Prepaids and Intangible Assets||1,924,515|
|Property and Equipment, Net||11,857,247|
|Accounts Payable and Accrued Expenses||$||1,704,837|
|Total Net Assets||106,703,912|
|Total Liabilities and Net Assets||$||111,877,490|
|American Century Investments Endowment Fund||$||49,060|
|Andrea Leigh Tomlinson—Planet Cancert Fund||333,240|
|Barbara Dungey Memorial Fund||27,142|
|Betsy H. Schofield Memorial Fund||956,119|
|Christine Pratt Memorial Fund||30,025|
|Coxe Family Fund||1,196,521|
|Dan L. Jones And Janet Gifford North Endowment||30,224|
|Dana Jay Lesnever Memorial Fund||44,908|
|David Knaggs Endowment||54,964|
|Dell Children's Hospital Gift In Honor Of Sandra Aragona||299,954|
|Dick Dyhrman Memorial||37,252|
|Elizabeth Lausmann Jacobs Memorial Fund||27,902|
|GUPTA Family Fund||29,083|
|Hammer Family Fund||42,417|
|In Honor of Betty Otter Nickerson||59,112|
|In Honor of James "Jimmy" Baumoel||34,388|
|In Honor of Kathleen B. And James N. Sherman||41,336|
|In Honor of Kevin "K2" Kerwin||27,563|
|In Honor of Lawrence "Larry" S. Dolin||27,930|
|In Honor of Michael R. Henry||30,883|
|In Honor Of Rainbow Babies and Children's Hospital, Cleveland, OH||31,605|
|In Honor of Renee Nicholas||40,710|
|In Honor of Sharon Mooney||34,323|
|In Honor of the Staff of The LIVESTRONG Foundation||106,400|
|In Honor of Thomas F. Slater||33,971|
|In Honor of Wesley Edwards||31,595|
|Jeannette J. Jehl Memorial Fund||109,036|
|Jennifer Smith Collison and Ward Smith Memorial Fund||31,347|
|Karen and Everett Cook Endowment Fund||304,246|
|Kawaja Jolcombe Fund||$||66,287|
|Kaya Knerly LIVESTRONG Foundation Endowment Fund||30,455|
|Keizo Shimano Memorial Fund||30,983|
|Kennedy Marshall Endowment Fund||138,386|
|Larry and Dr. Nancy O'Reilly, Lauran, Leigh, Ragan Family Fund||1,612,325|
|Leanne Jones LIVESTRONG Memorial Fund||30,883|
|Lydia Hunter-Reay Memorial Fund||27,577|
|Marshall G. Lutz Endowment Fund||55,888|
|Martha Southern Hirsch Memorial Fund||30,883|
|Mckinnon Family Fund||29,468|
|Mcphail Family Endowment||26,502|
|Michael w. Lotz Memorial Fund||105,545|
|Nike Endowment Fund||110,764|
|Oakley Endowment Fund||576,095|
|Pledged And Undesignated||8,343|
|Radioshack Endowment Fund||110,764|
|Rise Above It (RAI), In Memory of Colin O'Donoghue||26,156|
|Ronette Espinoza Memorial Fund||29,083|
|Ryan Phua Memorial Fund||556,064|
|Stephanie Robins Memorial Fund||673,978|
|Susan E. Kuhn, Cyrus T. Wingate and Sevilla M. Trevistani and Thomas P. Trevisani, II Family Fund||26,645|
|The Armstrong Family Fund||1,206,286|
|The Bill Passey Family Fund||30,523|
|The Hamilton Jordan Fund||108,090|
|The Lee Family Fund||207,887|
|The Sophia Kolevich Remembrance Fund||32,210|
|The Ulman Family Endowment||36,769|
|The Wade F.B. Thomason Endowment Fund||110,764|
|The Wood Braunstein Family Fund||25,480|
|Undesignated Endowment Funds||224,371|
Closed on December 31, 2002, the Founder's Circle brought together entrepreneurial stewards who understood our passion and made a difference through donations of $500,000 or more. The LIVESTRONG Foundation honors these individuals in perpetuity for their generosity and continued support.
|Aragona Family Foundation|
|The Armstrong Family|
|Tench Coxe and Simone Otus-Coxe|
|Mrs. Jane Frazier|
|Jeff and Bonita Garvey|
|Steve Hicks and Donna Stockton-Hicks|
|James C. Kennedy|
|Craig G. Malloy|
|Jean M. Schuler|
|Andrew T. Sheehan|
|Mike and Carol Sherwin|
|Brad A. Silverberg|
|Angela and Morton Topfer|
|E. Lee Walker and Jennifer Vickers|
The 7 Society recognizes individuals and organizations who have made an extraordinary financial commitment to the LIVESTRONG Foundation. Each member of this group has a cumulative giving commitment totaling $1 million or more to the global fight against cancer.
|American Century Investments|
|O'Reilly Family Foundation|
|Eve and Ellis Short|
|Sandra and Joe Aragona|
|Tench Coxe and Simone Otus-Coxe|
|Bonita and Jeff Garvey|
|Carol and Mike Sherwin|
|Laura and Casey Wasserman|
|Elizabeth and Blaine Rollins|
|24 Hours of Booty|
|Scott and Katie Schofield|
|Johnson Health Tech|
|4 Yellow Foundation|
The President's Circle is a unique giving society that capitalizes on the Foundation’s mission-focused opportunities. Members of the President's Circle give unrestricted "venture funds" which will be targeted at opportunities where other funding is not always readily available. Unrestricted gifts, which may be used at the discretion of the president, are especially effective in helping to promote our mission and position the LIVESTRONG Foundation as a global leader in the fight against cancer.
|Candice and Brent Aaron|
|April, Jeremy and Jake Anderson|
|Judd Apatow and Leslie Mann|
|The Armstrong Family|
|Richard C. Barker|
|Doug and Mary Bowden|
|Jeff Castelaz and Jo Ann Thraikill|
|Dennis and Chris Cavner|
|Chris and Cara Dodson|
|Scott and Jennifer Donaldson|
|The Donziger Family|
|James W. and Richelle Fatheree|
|Fitzgibbon Family Fund|
|Will and Laurens Flanagan|
|Maria and Sandy Fleschman|
|Amy and Jerry Frostick|
|The Garofalo Family|
|Laura and Morris Gottesman|
|Cindy and Bill Graf|
|The Griffeth Family|
|Bob, Kim, Shayna, and Josh Hammer|
|The Hayes-Lattin Family|
|Scott Hendler and Lulu Flores|
|Philippe G. Hills and David W. Hanson|
|Tom and Elizabeth Kaplan|
|Kawaja/Holcombe Family Fund|
|The Kelly Brothers|
|Jerry and Angie Kelly|
|Bart and Barbara Knaggs|
|Josie E. Knight|
|Susan and Mark Kolman|
|Laura and Stuart Litwin|
|Kimi Lotz and Lisa Goyne|
|Spencer and Susan Lueders|
|Rebecca L. and John F. Lumann III|
|The Malloy Family|
|Drs. Marcy and Peter Mann Family|
|Mark and Annie McKinnon|
|Andy Miller and Brian Stephens|
|Adam and Camille Moore|
|Jeff and Jeri Mulder|
|Dr. Craig and Ellen Nichols|
|Charlie and Mary Beth O'Reilly|
|Katie and Kyle Oudt|
|Amber and Tony Paquette|
|Rise Above It (RAI)|
|Alexandra and Robbie Robinette|
|Joe C. Ross|
|Dr. and Mrs. Corey Rothrock|
|Bob and Cathie Salipante|
|Scott and Katie Schofield|
|The Seach Family|
|Kozo and Martha Shimano|
|Alexander and Irene Shoghi|
|Silver Oak Cellars/Twomey Cellars|
|Lydia and Michael Slaby|
|Spaw Family Foundation|
|The Stapleton Family|
|Survivor Summit 2012|
|Patt Baenen and Patt Tapscott|
|Anthony S. Tortorelli|
|The Tronstein Family|
|Suzanne and Marc Winkelman|
|Steven and Heather Wolf|
|Jack and Cari Wood|
At the LIVESTRONG Foundation, our mission is to inspire and empower people affected by cancer today. We do this by striving to fundamentally change the expectations and experience of living with cancer. As an organization, we don’t believe in doing things the way they’ve always been done. We approach our mission from more than one angle: we develop and deploy programs that provide direct service to those who need it while advocating at the global, federal and state levels for legislation that will improve the lives of cancer survivors.
2013 and beyond are no different. Over the course of the next three years, we will focus on the following priorities:
Thank you so much for taking the time to learn about the Foundation’s progress and our continued focus on our mission to help those affected by cancer today. Your partnership, investment and support inspire us and allow us to change the world as a community. We look forward to updating you regularly on our accomplishments which simply would not be possible without you.
Mission. Above all else.
Mike Amann led the design of the Annual Report you’re reading right now. And if you’ve seen the printed version, you likely noticed the cover was screen printed with layers of color and meaning. He did that as well. Mike is not just a graphic designer but also a new father, a husband, a son, a brother, a friend, a warrior and an inspiration. Mike is fighting a vicious neuroendocrine cancer right now and was doing so throughout the entire design process of this report. Chemo on Mondays, hospital visits far too often, surgeries scheduled. Didn’t matter. He showed up to his studio in Covington, Kentucky, every day he could, with Juno the Doberman by his side. His passion for telling LIVESTRONG stories through his art rose to the top. His craftsmanship outdueled cancer every day of the week. And his drive doesn’t stop there, as Mike will be taking on his cancer with a breakthrough surgical approach that will help educate the cancer medical community for the future.
This is Mike Amann. And this is what LIVESTRONG is all about.
November 10th, 2013, R.I.P. Mike.
Thank you for creating such a beautiful piece of work during your fight; we will always cherish it.
"Look into the eyes of my family and friends, that is where my legacy will be."